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Rights in Published Reports of Genetic Studies.  

Annette Flanagin

in AMA Manual of Style: A Guide for Authors and Editors (11 ed.)

Print Publication Year: 
Feb 2020
Published Online: 
Feb 2020
Item type: 
The rules for ethical approval of studies and for obtaining informed consent also apply to genetic studies of family pedigrees and population-based samples. However, obtaining written consent for publication of identifiable information from all members of a large pedigree (many of whom may be deceased or unaware of the collection of family data) may be difficult or impossible. Proposals for obtaining some form of group consent and for avoiding the publication of information about identifiable family members who will not give their permission have been considered....