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Patients’ Rights to Privacy and Anonymity and Consent for Identifiable Publication.  

Annette Flanagin

in AMA Manual of Style: A Guide for Authors and Editors (11th ed.)

Print Publication Year: 
Feb 2020
Published Online: 
Feb 2020
DOI: 
10.1093/jama/9780190246556.003.0005.022.0221
Item type: 
section
Privacy is a state or condition of limited access to matters of a personal nature, including but not limited to personal information about individuals, their bodies, their decisions, and their familial and intimate relations, as well as their right to control such access.37 When individuals grant others some form of access to themselves (eg, during a patient-clinician or participant-investigator encounter), they (patients and study participants) may allow limited intrusions in private matters but are not waiving all such rights. Thus, a loss of privacy depends on the kinds or amount of access, who has access, through what means, and pertaining to which aspect of a person’s identity....

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